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~ A Cochlear Implant Journey

Adventures With Sound

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“I hear a symphony, a tender melody, pulling me closer”

27 Monday Jan 2014

Posted by Sara in Uncategorized

≈ 2 Comments

Tags

context, lyrics, Mo'town, music, open caption, sounds, theatre

               “Ah things ain’t what they used to be, no no

               Where did all the blue skies go?

               Poison is the wind that blows

               from the north and south and east

               Woo mercy, mercy me, mercy farther

               Ah things ain’t what they used to be, no no”

                                             -Marvin Gaye

As a person living with a severe to profound hearing loss from birth, I experienced something for the first time in my life this past week and I’m still smiling about it. I went to the Broadway show and I understood every single word of it.

In my life thus far, I’ve had the privilege to attend dozens of productions -musicals, plays, concerts, shorts…and while I’ve enjoyed them all so much, I’ve always struggled to understand what was being said, what the context was, what the songs were expressing.

“Miss Saigon”, “Cats”, “Phantom of the Opera”, “Rent”, “Chicago, “Kiss of the Spider Woman”, “Mama Mia!”, The Vagina Monologues

Tina Turner, U2, Violent Femmes, The Temptations, Sarah McLachlan, Peter Gabriel, Depeche Mode, Jill Scott, Diane Reeves, Esperanza Spalding, Patti Smith, Buena Vista Social Club,  East Village Opera Company, Gregory Porter, Taj Mahal

Attending these events brought me great joy and I’ve never shied away from attending in spite of the fact that I was missing out on a major component.  Instead, I would focus on watching movement, observing faces, interpret music  in my own way -even so far as to imagine what was being said as empathetically as I could. In a sense, I would create my own version of the production in my head with the information available to me through my four and a half senses.

Plays could be researched beforehand to help provide context and those who attended with me would do their best to fill me in as the production progressed.  Some larger venues would have enormous monitors throughout, displaying a performer’s face so that I could catch snatches here and there.  In many cases, I would even recognize favorite songs -those I would know the lyrics by heart and could “hear” from memory. U2’s “With or Without You”, Tina Turner’s “Private Dancer”, The Temptations’  “Just My Imagination”

Watching the expressions on other concert goers’ faces would fill me with happiness and  sometimes if I was lucky I could read their lips as they sang along -my own private interpreters.  Elaborate costumes, gorgeous choreography and the energy of the crowd provided me with an incredible experience in itself. A different kind, yes, and without words but still so beautiful in its unique way.

               “You’ve given me a true love,

               and every day I thank you love

               For a feeling that’s so new

               So inviting, so exciting

               Whenever you’re near

               I hear a symphony

               A tender melody

               Pulling me closer

               Closer to your arms”

                              -Diana Ross

This past Tuesday evening, all of that changed.  My partner and I attended the incredible Mo’town The Musical -a production we’ve wanted to see for quite some time as we know one of the lead performers but because I knew I wouldn’t be able to understand most of it, my partner did not want to attend as she felt this was unfair to me.

And then we found out that this particular performance was open-captioned. So we jumped at the opportunity.

Thanks to an amazing organization called the Theatre Development Fund, Mo’town and scores of other theatre  productions are made open captioned for a selected number of performances.  A text display stationed at the side of the stage provides a simultaneous transcription of dialogue and lyrics during a live performance. Because I don’t know sign language, this was the perfect solution for me -along with thousands of others who are hard-of-hearing.

When we reached our seats and took our coats off, moments before the lights dimmed, I scanned the crowd and noticed dozens of people wearing hearing-aids and cochlear implant devices all around me.  Suddenly, as the theatre darkened, bright orange words flashed on a rectangular screen to the left of the stage as a song -one of 59 began, accompanied by a booming 18-piece orchestra.  “You’re Nobody ’til Somebody Loves You”, “Dancing in the Streets”, “War”, “My Guy”, “Ain’t No Mountain High Enough”…and so many more.  And I could understand every single word the performers were singing and saying.

Overwhelmingly happy, I cried.

               “You and I must make a pact

               We must bring salvation back,

               Where there is love, I’ll be there.

               I’ll reach out my hand to you

               I’ll have faith in all you do.

               Just call my name and I’ll be there.

               I’ll be there to comfort you,

               Build my world of dreams around you,

               I’m so glad that I found you.”

                              –Berry Gordy

As the story moved along and the action shifted about on the stage, in synchronous movement my head along with dozens of others around me swung back and forth from the screen back to the stage, reading quickly and then watching the performers.  Several were clapping along, many were smiling and all of us could understand.  Being able to read the words made the musical experience so much richer.  This time -for me costumes and stage decorations were icing on the cake and the choreography was so much more fun – simply because I was able to “hear” the words to the songs to which they were dancing.

Since first introducing this service to Broadway in 1997, there have been over 46,000 admissions to TDF open captioned performances. More information on this amazing organization can be found here.

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Meat-lovers & dog kicking

12 Tuesday Nov 2013

Posted by Sara in Uncategorized

≈ 1 Comment

Tags

conversation, hard-of-hearing, lip-reading, patience, sign language, sounds

Last week while walking back to work from lunch with a colleague, I kicked a small dog. Hard. The owner shot daggers at me and of course, I was horrified. I apologized profusely but I was still pierced by the withering glare of the pup’s daddy.

It happened while we were walking along a typical New York sidewalk up 8th Avenue in Chelsea -not too wide and relatively crowded with other hurried pedestrians. I was intently reading Sarah’s lips and trying to keep up with our conversation concerning a business project -all the while navigating what I couldn’t see in front of me because my eyes and head were turned toward her face. Sideswiped someone’s grocery bag but not so much that they dropped it. Near-missed a wheel-chair ramp railing exiting a building -only mildly dinging my right hip against the metal pole. Almost stepped off a curb into direct traffic. And then on complete accident, I kicked the pooch that had magically landed in front of me just outside of my lip-reading periphery.

Let’s talk about lip reading. More importantly, the experience of relying on lip-reading. In my 38 years of living as a hard-of-hearing person, one comment I receive the most is how “amazing it is that I can read lips so well” and it’s usually followed by garden-variety comment such as “you could be a spy” or “what am I saying?” and that sometimes leads to the obligatory game of repeating back silently mouthed phrases.

“What’s my name?”

“Can you read my lips?”

“What am I saying?”

“This…is…so….cool.”

After the fun little game is completed, I debate whether it wouldn’t be inappropriate to hand over a t-shirt that says “I’m certified.”

Another droll routine occasionally occurs when I meet any random stranger and we have a conversation. Often times, at some point in the initial conversation I may have to explain that I am hard-of-hearing and that I need for that person to stop playing with their moustache or to remove his or her hand away from his/her mouth so that I can have full view of the two lips that are forming the words.

This is where the circus act comes in. When said person fully comprehends that I am indeed reading their lips, they do the worst possible thing. They start to articulate. And by articulate, I mean go into extreme slo-mo with wild, almost unnatural gelationous mouth movements. I suddenly think of Jim Carrey performing some obnoxious scene and it becomes very difficult for me to maintain a straight face -much less understand what is being said. Some will even offer some strangled form of hand-gestures that are supposed to pass for sign-language. And I don’t even know sign-language.

I gently explain that I don’t need for them to…ahem…articulate. After all, I was “reading” just fine moments ago. All that was needed was for that particular visual obstacle -such as a hand or a piece of masticated debris to be removed. Yet the eyes go wide and the extraordinary articulation continues. And the hand gestures don’t quite go….away.  It’s in these particular cases that I want to hand the winning person a t-shirt that reads, “I”m certifiable.”

Lip-reading a large group can be likened to watching a hyper game of table tennis -with more than two players and more than two sides of a table. One of the challenges of effective group lip-reading is to find the person is talking among the bunch. This can be quite taxing in a larger group -especially when sitting around a square or rectangular table. So the trick is to settle your sights on one or two people who appear to be doing most of the talking and in the meantime fill in the blanks yourself so that you can remain an  active part of the conversation -or at least have your contributions maintain some relevance to the current subject matter.

That trick, though, has a few caveats.  At the very same lunch mentioned above, another classic lip-reading moment occurred. As it was a Friday afternoon that we went for our meal, we were all talking about our plans for the upcoming weekend. I asked a co-worker directly across from me if she was planning to go to visit her boyfriend in Pennsylvania.  She replied yes and the conversation eventually led to the pro’s and con’s of living outside of the city -meaning NYC.  More space, less people to deal with, less noise, cheaper housing….and so on.

I explained that we have two dogs and that we were lucky because we have a backyard, which is unheard of in Manhattan but we did not have a car. She mentioned that her boyfriend had what I thought she said a dog. I asked her what kind and she replied, “a Mercedes”.  My brain automatically started to try to picture what a “mercedes dog” looked like. Troubled, I asked her how big it was.

She looked at me and said, “um…not that big”.  I told her I had never heard of a mercedes dog and what did it look like? Her eyes went wide and she looked at me for a brief ten seconds. Suddenly, it clicked. She smiled and said, “He has a CAR.” Oh!  A car.  (shit.) We both snickered for a few moments and the conversation went on.

“Car”, “dog”. That makes sense. One syllable words with vowels that look the same in a darkened Mexican restaurant where the margaritas are flowing.

Moments later, I swung my eyes to another co-worker -employing the same trick of watching a person who is a lively participant to get a sense of where the general conversation was at.  Someone asked her who she was going to an event with and she coyly replied, “My lover” but because I was not used to that type of reference and I knew that she had a boyfriend with whom she lived, I thought she said, “Meat lover”. I smiled at her and told her that I thought that was cute that she called her boyfriend “Meat lover”.

She and I gazed at each other silently. I ran through the possibilities in my head… “Meat Lover. Why she she call him ‘meat-lover’? What does that mean? Is it a pervy reference of some sort? Is it really that he just loves his meat? What kind of meat, exactly? Or wait, is he an extreme vegetarian?” My imagination went straight down and through the rabbit hole. Her eyebrows went up, she smiled wanly, pointed to herself and said, “My lover.” We both started laughing so hard because oddly enough, even though it was not what she originally said, “meat lover” still made sense.

Lip-reading has been a life-saver for me. I’m able to participate in a mainstream lifestyle with very little additional aid and for that, I’m grateful. But make no mistake,  lip-reading absolutely has its hazards. Meter maid poles, fire hydrants, uneven sidewalks, car bumpers, scaffolding towers, conversational disconnects that lead to wild goose chases, misinformation and the maiming of small animals.

Hairball removal and Pat Metheny’s “First Circle”

22 Tuesday Oct 2013

Posted by Sara in Uncategorized

≈ 4 Comments

Tags

CI moment, cochlear implant, high frequency, music, patience, progress, sound, sounds

It’s day six of being ‘activated’ and I must admit it’s been very interesting.  I’ll also admit that it’s been an exercise in extreme patience.  During dinner last night, I told Lisa that while I absolutely do not regret this, I can see how some people would go a little nuts in the beginning. I can see how failed expectations can really falter determination and even discourage actively pursuing progression.  Two things are at play here.  Expectations and surrendering.

Because I have no idea what it is to hear high-frequency sounds, I also have no idea of what kind of expectations are reasonable.  A person cannot help but to have expectations. Planning that trip to a place you’ve never been to before during a time that you really, really need a trip, your mind cannot help but to visualize what it’s going to look like. You imagine how it will feel to stroll slowly along cobblestoned streets with colorful flowers, quaint outdoor cafes and wafts of laughter floating by. (Yes, I said “wafts”.) Or that oceanside spot -your toes dug in sand, your hair damp from that incredible swim you just took and a cold, refreshing beverage in your hand.  You keep imagining over and over again what it will look like and you can’t help but to smile in expectation. Ahh…..

And then you get there. Boom.  One of the kids gets sick, your suitcase got lost and the bed-and-breakfast room that you booked smells like mold.  To make matters worse, you’ve got the worst sinus headache known to humankind.  And all you want to do is sleep…because you’re exhausted. You keep thinking in the back of your head, “This was not supposed to happen!”

In this case, while I don’t have to sniff a moldy guest room and I don’t have sick kids to tend to and I don’t have a suitcase I have to track down in a foreign country, I do have ringing in that ear, I’m totally exhausted and I do feel downtrodden, like “What!? This is not the what I thought it would be.”

At the end of every day so far, I’ve had a mild headache, I feel like a sleepwalking, cranky, crabby zombie and my left ear has a strange ringing/rushing sound in it -even after I take the processor off. It was so loud one night that I began to wonder if what I was “hearing” with the processor on was a figment of my imagination!  Albeit, when I woke up the next morning, the sound had thankfully vanished.

Having described all of the difficult parts, and they have been difficult, it’s even more important that I look at the other side of the coin.  I had what some call a “CI” moment yesterday on the bathroom floor while removing a matted hairball from our 18 year old cat, Molly.  A CI moment is a moment when a cochlear implant recipient experiences hearing in a brand new way and it’s extraordinarily exciting. Often times it’s a small moment but so many of those moments make up a mosaic that becomes your new hearing experience -the one that you are working so hard for.

So, back to the bathroom floor, scissors in hand and a very angry old toothless cat, I was wearing only the processor -I had left my hearing aid out so that I could let my left ear do some work.  I had my computer open in the dining room and my YouTube list of favorites was playing. Carefully cutting through this particularly large hairball, I kept hearing -or rather feeling this beat in my head. I shook my head and looked at the cat. She glared back at me.  It was not my imagination -the beat continued. Leaning forward, I snipped another tuft of fur and as she bit my hand with her gums, I thought to myself, “Am I hearing something or am I nuts?”

Moments later after freeing Molly’s offending hairball, I sat down in front of my computer and suddenly realized that the beat bouncing in my head were the notes to Pat Metheny’s “First Circle”.  “First Circle” contains a myriad of high notes produced by an assortment of instruments and human voices.  To the natural hearing ear, it’s a melodic exploration of sound but to my ear, half of the song was inaccessible -that is, until yesterday on the bathroom floor with my enraged kitty.  I could suddenly hear the high-frequency beats and when I realized what it was, it made sense.  It was a definite “CI” moment.

I mentioned surrender.  This is the difficult part.  I’ve noticed that when I “surrender” my expectation of sound, I hear more.  When I stop listening for something, I hear more.  When I was concentrating on avoiding the cat’s attempts to bite me while not scissoring her on accident, that’s when I could hear the beat.  While I’m sitting here typing this, I can hear the  beats.  It’s when I strain and listen for what I believe it to sound like is when the song fades away.  I’m working on surrendering to new sounds and my patience is being worked. Then again, patience is a muscle that must exercised   regularly in order to grow.

When you look back on that trip you took where you had so many expectations that failed to materialize and you felt so left down, you may also remember some super sweet moments that made the trip incredible.  You may have held your sick kid on your lap while watching a gorgeous sunset from the porch swing at the “moldy” guest house. You may have taken a nap three days in a row to help your sinus headache go away, only to find out that you really just needed some sleep -peaceful, uninterrupted sleep. And you may remember laughing so hard with your family that your face hurt.

That’s what I’m working on. Letting the CI moments come so that I can have my own mosaic of hearing experiences.  But I do suspect that the cat will be hairless before this all over.

“Hand me the doggy bag…I can’t hear the music.”

18 Friday Oct 2013

Posted by Sara in Uncategorized

≈ 1 Comment

Tags

beat, cochlear impant, mapping, music, sounds, vibrations

A few nights ago, before activation, Lisa and I went out for dinner at a neighborhood restaurant. I had my leftovers packed up to go in a doggy bag -a styrofoam container in a plastic bag.  Strolling down the street, we noticed that there was live music happening at Rooster’s, another neighborhood establishment. We decided to go in for a nightcap and to enjoy some tunes.

The music consisted of a fantastic DJ spinning some beats accompanied by a violinist playing nearby.  The place was jammed with patrons chatting, laughing and some even dancing. Polished cement floors and enormous windows contributed to the bouncing cacophony of sound that was swirling around my lone hearing-aid and it was becoming too much.  I stood still and tried to relax, focusing on the dancers in front of me.

Lisa tapped my shoulder, motioning for me to take the glass of wine and the doggy bag that were in her outstretched hands. I reached over and took both items and suddenly the beat of the music made sense to me.  Looking over at the violinist, I happily watched him sway as my right foot tapped in time to the vibrations reverberating through the styrofoam container in my left hand.

With the aid the styrofoam clenched in my fingers, my brain was able to isolate some of the sounds and I could see where the beats were coming from.  Fast forward to today, that’s what I feel is happening with my newly “activated” left ear. I’m experiencing an odd assortment of sounds -mostly a dull roar, almost like a continuous tone of white noise with the sporadic injunction of a tweet or ping.

When I leave my hearing-aid out, it’s hard for me to map where the errant tweet or ping comes from and I don’t even necessarily hear anything more than that but when I put my hearing-aid back in my right ear, I suddenly hear more in my left. I know this is because my brain is mapping sounds with the help of my right ear -which I’m now referring to as my “styrofoam doggy bag”.

I can definitely tell the difference today and it’s only been 24 hours. My hearing is heightened.  Almost like when you have a decade-old prescription for eye glasses and you’re used to it. You go in and grudgingly get a new prescription and, wow! things are so much more crisp! You can read those signs! Huh!

It’s not all clear yet and there’s clearly a lot more mapping to do but I can see where this is going.  Today I tap-danced in the office bathroom after flushing the toilet because I could hear the tinkling of the tile under my shoes. And I liked it!

Recent Posts

  • Becoming a robot on Halloween…?
  • A whole twelve percent!
  • “I hear a symphony, a tender melody, pulling me closer”
  • Looking at each sound within the entire mosaic.
  • Meat-lovers & dog kicking

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