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~ A Cochlear Implant Journey

Adventures With Sound

Tag Archives: patience

Meat-lovers & dog kicking

12 Tuesday Nov 2013

Posted by Sara in Uncategorized

≈ 1 Comment

Tags

conversation, hard-of-hearing, lip-reading, patience, sign language, sounds

Last week while walking back to work from lunch with a colleague, I kicked a small dog. Hard. The owner shot daggers at me and of course, I was horrified. I apologized profusely but I was still pierced by the withering glare of the pup’s daddy.

It happened while we were walking along a typical New York sidewalk up 8th Avenue in Chelsea -not too wide and relatively crowded with other hurried pedestrians. I was intently reading Sarah’s lips and trying to keep up with our conversation concerning a business project -all the while navigating what I couldn’t see in front of me because my eyes and head were turned toward her face. Sideswiped someone’s grocery bag but not so much that they dropped it. Near-missed a wheel-chair ramp railing exiting a building -only mildly dinging my right hip against the metal pole. Almost stepped off a curb into direct traffic. And then on complete accident, I kicked the pooch that had magically landed in front of me just outside of my lip-reading periphery.

Let’s talk about lip reading. More importantly, the experience of relying on lip-reading. In my 38 years of living as a hard-of-hearing person, one comment I receive the most is how “amazing it is that I can read lips so well” and it’s usually followed by garden-variety comment such as “you could be a spy” or “what am I saying?” and that sometimes leads to the obligatory game of repeating back silently mouthed phrases.

“What’s my name?”

“Can you read my lips?”

“What am I saying?”

“This…is…so….cool.”

After the fun little game is completed, I debate whether it wouldn’t be inappropriate to hand over a t-shirt that says “I’m certified.”

Another droll routine occasionally occurs when I meet any random stranger and we have a conversation. Often times, at some point in the initial conversation I may have to explain that I am hard-of-hearing and that I need for that person to stop playing with their moustache or to remove his or her hand away from his/her mouth so that I can have full view of the two lips that are forming the words.

This is where the circus act comes in. When said person fully comprehends that I am indeed reading their lips, they do the worst possible thing. They start to articulate. And by articulate, I mean go into extreme slo-mo with wild, almost unnatural gelationous mouth movements. I suddenly think of Jim Carrey performing some obnoxious scene and it becomes very difficult for me to maintain a straight face -much less understand what is being said. Some will even offer some strangled form of hand-gestures that are supposed to pass for sign-language. And I don’t even know sign-language.

I gently explain that I don’t need for them to…ahem…articulate. After all, I was “reading” just fine moments ago. All that was needed was for that particular visual obstacle -such as a hand or a piece of masticated debris to be removed. Yet the eyes go wide and the extraordinary articulation continues. And the hand gestures don’t quite go….away.  It’s in these particular cases that I want to hand the winning person a t-shirt that reads, “I”m certifiable.”

Lip-reading a large group can be likened to watching a hyper game of table tennis -with more than two players and more than two sides of a table. One of the challenges of effective group lip-reading is to find the person is talking among the bunch. This can be quite taxing in a larger group -especially when sitting around a square or rectangular table. So the trick is to settle your sights on one or two people who appear to be doing most of the talking and in the meantime fill in the blanks yourself so that you can remain an  active part of the conversation -or at least have your contributions maintain some relevance to the current subject matter.

That trick, though, has a few caveats.  At the very same lunch mentioned above, another classic lip-reading moment occurred. As it was a Friday afternoon that we went for our meal, we were all talking about our plans for the upcoming weekend. I asked a co-worker directly across from me if she was planning to go to visit her boyfriend in Pennsylvania.  She replied yes and the conversation eventually led to the pro’s and con’s of living outside of the city -meaning NYC.  More space, less people to deal with, less noise, cheaper housing….and so on.

I explained that we have two dogs and that we were lucky because we have a backyard, which is unheard of in Manhattan but we did not have a car. She mentioned that her boyfriend had what I thought she said a dog. I asked her what kind and she replied, “a Mercedes”.  My brain automatically started to try to picture what a “mercedes dog” looked like. Troubled, I asked her how big it was.

She looked at me and said, “um…not that big”.  I told her I had never heard of a mercedes dog and what did it look like? Her eyes went wide and she looked at me for a brief ten seconds. Suddenly, it clicked. She smiled and said, “He has a CAR.” Oh!  A car.  (shit.) We both snickered for a few moments and the conversation went on.

“Car”, “dog”. That makes sense. One syllable words with vowels that look the same in a darkened Mexican restaurant where the margaritas are flowing.

Moments later, I swung my eyes to another co-worker -employing the same trick of watching a person who is a lively participant to get a sense of where the general conversation was at.  Someone asked her who she was going to an event with and she coyly replied, “My lover” but because I was not used to that type of reference and I knew that she had a boyfriend with whom she lived, I thought she said, “Meat lover”. I smiled at her and told her that I thought that was cute that she called her boyfriend “Meat lover”.

She and I gazed at each other silently. I ran through the possibilities in my head… “Meat Lover. Why she she call him ‘meat-lover’? What does that mean? Is it a pervy reference of some sort? Is it really that he just loves his meat? What kind of meat, exactly? Or wait, is he an extreme vegetarian?” My imagination went straight down and through the rabbit hole. Her eyebrows went up, she smiled wanly, pointed to herself and said, “My lover.” We both started laughing so hard because oddly enough, even though it was not what she originally said, “meat lover” still made sense.

Lip-reading has been a life-saver for me. I’m able to participate in a mainstream lifestyle with very little additional aid and for that, I’m grateful. But make no mistake,  lip-reading absolutely has its hazards. Meter maid poles, fire hydrants, uneven sidewalks, car bumpers, scaffolding towers, conversational disconnects that lead to wild goose chases, misinformation and the maiming of small animals.

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A skateboarder’s herbacious high and a CI moment

04 Monday Nov 2013

Posted by Sara in Uncategorized

≈ 6 Comments

Tags

activation, CI moment, cochlear impant, lip-reading, mapping, patience

It’s week three of being activated and so far, it’s been …interesting. I want to tell you that I love it. I want to say that it’s been one auditory revelation after another and that I’m jumping up and down because the quality of my hearing has skyrocketed.

In all fairness, I can’t do that. This whole experience is not any of those things. It’s not firework explosions and crystal clarity that I’ve never experienced before. It’s not me picking up the telephone and having conversations with college girlfriends or family without a translator nestled somewhere in between. It’s not me putting on music and smiling along with the lyrics that I’ve never understood before.

No. It’s none of that. What it is…is frustrating. It’s downright grueling work. And frankly, if I’m to be very open and honest about it, I don’t like it right now. I don’t regret it but  I’m struggling with it. I’m having conversations with myself about how I knew this would be hard work. That it’s not what I expected but if I’m to fully benefit from what this whole cochlear implant procedure and process truly is, then I will need to surrender over and over again. And I don’t like it. Patience is not my virtue.

For the last two weeks, I’ve been exhausted. I fall into bed around 8:30 every night with a steady tone ringing in my implanted ear. The tone begins around 4 or 5pm every night and goes away by the time I wake up. The tone is from the nerves being overstimulated. While I haven’t experienced headaches, I do feel a deep tiredness like my brain was doing calculations all day long with an accountant while trying to also write a thesis paper for physics -two subjects I know nothing about. That kind of tired.

I can tell you what all of this is, though. Right now it’s dozens and dozens of little CI moments. Some strung together like homemade Christmas popcorn garlands, one after another. Others singular and quite momentous in themselves.

From the day of activation up until now and for the next few months, I’m experiencing what I can best describe as tap dancing on my auditory nerves. I don’t feel like I’m hearing sounds. I feel like there are little tiny people inside my head with tiny little hammers and they’re tapping away at my under-exposed nerves. Tap, tap, tap, tinkle. Tappity-tappity tap…ping!

All of this tapping serves a purpose, though. As weird as I feel, I can already see the progress of these taps, tinkles and pings. The under-exposed nerves have never heard sound before. Ever. Because of that, the programs that I’m working with are designed to slowly increment the range of sounds that are allowed in, giving the infantilized nerves time to wake up, get acquainted and become active participants in receiving and processing sound.

I’ve already worked through a set of four programs -each active for 3 days. Now I’m working my way through a second set of four programs given to me by my audiologist. These programs last for a week each. Today I’m on the second. And I feel high. Not uncomfortably so but I do feel like I ingested something and everything is a wee bit illuminated.

I wear a BTE (behind the ear) hearing aid in my right ear that affords me very little  residual hearing. Right now that residual hearing feels like it’s been touched with sprinkles of heightened color and glitter. I can read lips so much better. Sounds feel prettier. I’m experiencing less difficulty understanding conversations in front of me, especially when I sit back and allow myself to relax.

Last week I was out walking the dogs and enjoying some gorgeous Fall weather when suddenly I heard/felt a rumbling sound. The dogs jumped and I turned around to see a young man on a skateboard roll up to us. He jumped off and with a broad, lopsided smile asked if he could pet the dogs. I happily obliged and as he was kneeling over rubbing the their heads, we chatted about his own experiences with dogs. He was talking a mile a minute and I stood there, listening, smiling and nodding. I was smiling not at what he had to say but at the realization that I could understand almost every thing he was saying…and this was a stranger.

He chattered at me for a good five minutes, growing more and more animated and my grin grew wider and wider -gleeful that I could take all of this in! Suddenly, he stopped rambling and said, ‘Okay! Thanks! See you around!” and he was off, leaving behind a faint whiff of the cannabis. It hit me that he was having his own little special moment while I was having mine.

Two days later, I incremented to another program and on that very day, I attended a conference/panel discussion. Normally such events would be a battle for me. Missing out on approximately 50% of what is actually said, I attempt fill in the blanks to make sense of the subject matter. This time, I didn’t have to. My colleague and I sat up front where we had a clear view of all of the panel participants. I was able to lean back, read lips and with the help of an excellent sound system, I heard almost all of it. I was overjoyed! I found myself truly absorbing the information, understanding what was being discussed and I even felt confident enough to raise my hand and offer my own input -over and over again. This was an enormous CI moment for me.

Granted, the aforementioned event was within a controlled environment, with each person taking turns to speak and to speak clearly so that everyone could hear. Even so, this was an event of over 50 participants. That’s huge for me. I smiled for three days -even as I slept hard for three days as well because it was still indeed exhausting work.

I can now hear the swishing sound that my belt makes when I pull it through my jeans loops. I can hear the dog’s nails tapping on the hardwood floors as he trots to his food bowl. Can’t hear the cat yet but definitely the dog.  I can hear the clink of the spatula hitting the pan when making dinner. I can hear myself pee. I can hear that woman in high heels clicking across our open-air office’s cement floors.  I can hear my boss walking up behind my desk. The radiator as it gurgles to life.

The best is the yellow Fall leaves in our back yard. I can hear the leaves crunching under my shoes as I wade through them. It is absolutely moments like these that I’m hanging on to when I feel overloaded and discouraged.

Hairball removal and Pat Metheny’s “First Circle”

22 Tuesday Oct 2013

Posted by Sara in Uncategorized

≈ 4 Comments

Tags

CI moment, cochlear implant, high frequency, music, patience, progress, sound, sounds

It’s day six of being ‘activated’ and I must admit it’s been very interesting.  I’ll also admit that it’s been an exercise in extreme patience.  During dinner last night, I told Lisa that while I absolutely do not regret this, I can see how some people would go a little nuts in the beginning. I can see how failed expectations can really falter determination and even discourage actively pursuing progression.  Two things are at play here.  Expectations and surrendering.

Because I have no idea what it is to hear high-frequency sounds, I also have no idea of what kind of expectations are reasonable.  A person cannot help but to have expectations. Planning that trip to a place you’ve never been to before during a time that you really, really need a trip, your mind cannot help but to visualize what it’s going to look like. You imagine how it will feel to stroll slowly along cobblestoned streets with colorful flowers, quaint outdoor cafes and wafts of laughter floating by. (Yes, I said “wafts”.) Or that oceanside spot -your toes dug in sand, your hair damp from that incredible swim you just took and a cold, refreshing beverage in your hand.  You keep imagining over and over again what it will look like and you can’t help but to smile in expectation. Ahh…..

And then you get there. Boom.  One of the kids gets sick, your suitcase got lost and the bed-and-breakfast room that you booked smells like mold.  To make matters worse, you’ve got the worst sinus headache known to humankind.  And all you want to do is sleep…because you’re exhausted. You keep thinking in the back of your head, “This was not supposed to happen!”

In this case, while I don’t have to sniff a moldy guest room and I don’t have sick kids to tend to and I don’t have a suitcase I have to track down in a foreign country, I do have ringing in that ear, I’m totally exhausted and I do feel downtrodden, like “What!? This is not the what I thought it would be.”

At the end of every day so far, I’ve had a mild headache, I feel like a sleepwalking, cranky, crabby zombie and my left ear has a strange ringing/rushing sound in it -even after I take the processor off. It was so loud one night that I began to wonder if what I was “hearing” with the processor on was a figment of my imagination!  Albeit, when I woke up the next morning, the sound had thankfully vanished.

Having described all of the difficult parts, and they have been difficult, it’s even more important that I look at the other side of the coin.  I had what some call a “CI” moment yesterday on the bathroom floor while removing a matted hairball from our 18 year old cat, Molly.  A CI moment is a moment when a cochlear implant recipient experiences hearing in a brand new way and it’s extraordinarily exciting. Often times it’s a small moment but so many of those moments make up a mosaic that becomes your new hearing experience -the one that you are working so hard for.

So, back to the bathroom floor, scissors in hand and a very angry old toothless cat, I was wearing only the processor -I had left my hearing aid out so that I could let my left ear do some work.  I had my computer open in the dining room and my YouTube list of favorites was playing. Carefully cutting through this particularly large hairball, I kept hearing -or rather feeling this beat in my head. I shook my head and looked at the cat. She glared back at me.  It was not my imagination -the beat continued. Leaning forward, I snipped another tuft of fur and as she bit my hand with her gums, I thought to myself, “Am I hearing something or am I nuts?”

Moments later after freeing Molly’s offending hairball, I sat down in front of my computer and suddenly realized that the beat bouncing in my head were the notes to Pat Metheny’s “First Circle”.  “First Circle” contains a myriad of high notes produced by an assortment of instruments and human voices.  To the natural hearing ear, it’s a melodic exploration of sound but to my ear, half of the song was inaccessible -that is, until yesterday on the bathroom floor with my enraged kitty.  I could suddenly hear the high-frequency beats and when I realized what it was, it made sense.  It was a definite “CI” moment.

I mentioned surrender.  This is the difficult part.  I’ve noticed that when I “surrender” my expectation of sound, I hear more.  When I stop listening for something, I hear more.  When I was concentrating on avoiding the cat’s attempts to bite me while not scissoring her on accident, that’s when I could hear the beat.  While I’m sitting here typing this, I can hear the  beats.  It’s when I strain and listen for what I believe it to sound like is when the song fades away.  I’m working on surrendering to new sounds and my patience is being worked. Then again, patience is a muscle that must exercised   regularly in order to grow.

When you look back on that trip you took where you had so many expectations that failed to materialize and you felt so left down, you may also remember some super sweet moments that made the trip incredible.  You may have held your sick kid on your lap while watching a gorgeous sunset from the porch swing at the “moldy” guest house. You may have taken a nap three days in a row to help your sinus headache go away, only to find out that you really just needed some sleep -peaceful, uninterrupted sleep. And you may remember laughing so hard with your family that your face hurt.

That’s what I’m working on. Letting the CI moments come so that I can have my own mosaic of hearing experiences.  But I do suspect that the cat will be hairless before this all over.

Recent Posts

  • Becoming a robot on Halloween…?
  • A whole twelve percent!
  • “I hear a symphony, a tender melody, pulling me closer”
  • Looking at each sound within the entire mosaic.
  • Meat-lovers & dog kicking

Recent Comments

Allysa D. on A skateboarder’s herbaci…
M. Grey on A whole twelve percent!
Gail Miller on “I hear a symphony, a te…
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